Mitochondrial Disease Cure

I was talking to a friend the other day and we realized it is easy for people to say they will be there for you when you are grieving, but reality is they aren’t. They mean well but their lives get busy and go on while yours STOPS!

I am trying to sit back and wait to hear who is doing what on our committees. It is hard to do nothing and hard to do everything. I pray this is the best we have ever put on for Brittany.

Wow! We actually made it through the stay. Ashley is recovering at home now, thank God she did ok. It was so hard for both of us to be there, especially when many hadn’t heard.. How does that happen…. Anyway Freedom has surgery tomorrow and will be in hospital for two days…

Things are really strange!!!!

I want to thank everyone who came and those who emailed me about helping with Brittany’s 5th annual dinner/silent auction. It was a great turnout with great ideas, and I am greatfully pleased I got through it. We have a lot of work to do to make this the very best ever, to show Britt we will not give up or forget her and her cause. I love you all for what you are doing and I know our Lord will bless you so much.

From a thankful heart,

Linda and Freedom

First meeting for those with a heart to help continue with Brittany’s cause to find a cure. I can’ t wait to see how many will be helping out this year. I pray we have a huge turn out at the dinner, it will break my heart if we don’t. I miss her so much it is unbearable at times. I am counting on the many prayers of friends and loved ones to keep me sane. The Lord IS my shepherd!!!

I called our friend from the Ellen Show and told her I really needed to get away. She set us up for the day 11 of giveaways. It was so hard to be there cause this was Britt’s favorite place, we had been twice and Ellen came over each time to see Britt and Freedom. Britt was so excited that Ellen had remembered her name!

I cried off and on through the show, they showed some of Michael Jackson’s memorial and I thought oh Lord help me! It was a great show, I even waved to Ellen when she came out and she did wave back. Claudia was loving as usual,she helped Brit last time we went when she wasn’t feeling well. It was so bitter sweet.

We got great gifts and a 7 day cruise! Doug, Ash and I laughed and cried so hard, it was happy and sad all at once. We hope to go the end of Jan. for Derron’s bday.

Executive Producer came over after the show and talked to us. She was very lovely and said Ellen was happy we were there and so sorry to hear about Brittany. More handprints from Britt on the hearts of those that met her. I gave the E.P. two of Britt’s cds for her and Ellen and a thank you letter with a picture of all of us at the snow. I hope to hear from her.

Thank you Ellen for your loving compassion and generosity.

See ya next year with Freedom!!

We all went to Squaw Valley compliments of Ellen when we went Dec. o8. Britt, Nikki, Doug and I and of course Freedom. It took us 8 hours because the Grapevine was closed and then when we were going in, someone had forgotten that Freedom was coming so they weren’t prepared for her.

We laughed so hard because our trip down and our stay at the hotel was such an adventure, we should have been ready for it. We still got the gifts and were told we could come back any time.

We were waiting to get Britt’s shunt fixed to go on this trip together, but it didn’t work out. Britt passed away at the hospital on Sept. 6th and life will never be the same. I miss her more than words can express.

We went and Ashley took two of her closest friends as well as Nikki, Derron and the grandkids. We all had a very cold and somewhat bitter sweet time. Memories being made, but with all of us together the emptiness of our Britt was huge.

We made a snow angel and named her Britt.

We skipped Thanksgiving altogether, we just couldn’t bear it. Not because we are not thankful for what God gives us and has given us, but because we couldn’t be around people to celebrate when our pain is so great. We couldn’t eat turkey or mashed potatoes and we couldn’t eat pumpkin pie, it just didn’t seem right for some reason.

We miss Brittany so much, we can’t stand it.She lit up every room she came into and she was so witty in a quiet way. You really had to listen to pick up on the comments and they were funny. Her heart always wanted everything ok and she prayed for people all the time. She made me laugh and cry all the time. She was Britt and I miss her.

Today is Nikki’s gma’s funeral, I am praying for the family and especially Derrron and her. Derron will help carry the casket, I am sure it will be hard. They haven’t had much time to grieve for Britt because they have been there for us. Britt prayed all these years for Nikki’s family and I am sure she met gma when Jesus brought her home.

I spent some time tonight in Britt’s room and found many treasures. The most special one was a letter she wrote to Paula White when she was 10 years old nominating me for Qween for a Day because I take such good care of her and always stay at the hospital with her. She went on to say I helped her learn how to pray when her pain got really bad… It was bitter/sweet, I cried because she thought I was her hero when in fact she was and is mine. I miss you my precious angel.

Your Moma

Most people have told me it will get easier each day. Well that is a crock because it gets harder. It is more days without her and more pain. This is something a person will not get USED to so please when you talk to someone who has lost a child, just listen. If you have never lost a child you can’t know so even tho people mean well and just want to help, helping is listening with no coment sometimes. Funny how people are always going to BE THERE for you and only a select few really do.